Immune Deficiency Foundation

Immune Deficiency Foundation
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The Immune Deficiency Foundation (IDF) is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.


In 2012, in response to IDF’s advocacy, Congress enacted the Medicare IVIG Access and Strengthening Medicare and Repaying Taxpayers Act of 2012 (PL 112-242) that created a special Medicare demonstration project to evaluate the impact of a permanent intravenous immunoglobulin (IVIG) home infusion Medicare benefit on costs of providing the benefit....

What’s Happening
Congress is working right now to develop legislation that will replace the Affordable Care Act (ACA). It is imperative to let your Representatives and Senators know that they must not repeal the ACA without a plan to ensure that people keep the protections they currently have. No matter your political views, changes to the ACA can...

The focus of the Immune Deficiency Foundation (IDF) advocacy efforts has always been to ensure that all patients with a primary immunodeficiency disease (PI) have full access to the mode of treatment and site of care option that best suits their needs. Right now, patients are asking questions about how a recently enacted law, the 21st Century Cures...

Immune Deficiency Foundation

 •  December 21, 2016

Less than two weeks ago, Congress passed and the President signed into law the 21st Century Cures bill which will bring our healthcare innovation infrastructure into the 21st Century, delivering hope for patients and loved ones while providing necessary resources to researchers to continue their efforts to uncover the next generation of cures and...

Immune Deficiency Foundation

 •  December 6, 2016

Felix, age 7, starts out his video by saying a word that many kids his age probably don’t understand, let alone could pronounce. During his life, Felix has had many medical issues and was recently diagnosed with his primary immunodeficiency disease in the summer of 2016. He soon started subcutaneous immunoglobulin treatments after his diagnosis and...

Immune Deficiency Foundation

 •  November 28, 2016

Today, let’s show the world that we are more than our PI and get 300 donations in honor of the more than 300 types of primary immunodeficiency diseases (PI). Can we count you in?As of 9:30 AM, IDF already has a good start with 48 donations, but we need your help to reach 300 by midnight.If IDF has impacted your life, please consider participating...

Immune Deficiency Foundation

 •  June 6, 2016

Sam, a 13-year-old from Gothenburg, NE, was diagnosed with primary immunodeficiency disease (PI) when he was 11 years old. He was recently recognized at the Nebraska State Fair as a 2016 Finalist from the Nebraska Junior Academy of Sciences (NJAS) for his project studying immunoglobulin therapy and its effect on an individual with PI. He chose the...

Immune Deficiency Foundation

 •  May 26, 2016

My son Ben, who is now 3 years old, was sick from very early on. Ben was admitted to the hospital with pneumonia at 4 weeks old. Regardless of all of the specialists and follow up appointments that we encountered, we had no idea what path our family was on.In February 2015, we took Ben to the ER because he was unresponsive. He was transferred very...

Immune Deficiency Foundation

 •  May 9, 2016

“Nursing is more than a job for me, it is part of who I am.” – Mary, Nurse in the IDF CommunityThis week, May 6 – 12, the Immune Deficiency Foundation (IDF) is celebrating National Nurses Week. We would like to say thank you to all of the nurses who care for the primary immunodeficiency community and make a difference in the lives of our patients...

Immune Deficiency Foundation

 •  May 5, 2016

When I arrived for my first infusion almost four years ago, I was sick—and a little scared. I was taking antibiotics, again, for another respiratory infection that had lingered on and on. The GI side effects were no fun, either. And, I was feeling a little overwhelmed with the diagnosis of a primary immunodeficiency disease (PI). So that’s why I...